On July 10th, the federal government’s Office of Autism Research Coordination (OARC) released a new report analyzing the distribution of autism research dollars in 2010. This report – entitled the IACC ASD Research Portfolio – is an annual responsibility of the federal government under Public Law 112-32. At first glance, the report shows significant steps forward on one of the key priorities of the Autistic and autism communities: the percentage of research funding going towards services research: OARC reports 16% of the autism research agenda funding this priority, up from 3% in 2009. However, further scrutiny reveals that rather than an actual increase in the percentage of funding allocated to services research, OARC instead chose to re-classify existing training programs as “research” to give the impression of progress. Instead of getting more funding for services-research, we’ve just gotten creative accounting, re-classifying practitioner training programs as research activities.Also see coverage at Left Brain/Right Brain: here, here, and here.
I have written a book on the politics of autism policy. Building on this research, this blog offers insights, analysis, and facts about recent events. If you have advice, tips, or comments, please get in touch with me at jpitney@cmc.edu
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Friday, August 3, 2012
Questions About Research Priorities
From the Autistic Self-Advocacy Network: