I have written a book on the politics of autism policy. Building on this research, this blog offers insights, analysis, and facts about recent events. If you have advice, tips, or comments, please get in touch with me at jpitney@cmc.edu
Across town at the headquarters for Autism Speaks, a small group of dedicated mothers brainstorm. They've heard the names of the lawmakers reportedly trying to kill the bill. Judith Ursitti handles state government affairs for Autism Speaks. She tries to assure everyone that this sort of battle is expected.
For families without money, the only option left is the school system. And while schools can help a child, they can't replace the intensive therapies that lead to dramatic change, like in 8 year old Ava Bullard's case. She went from non verbal to high functioning after years of one-on-one specific treatment.
Developmental pediatrician Doctor Alan Weintraub says, "What the lay public doesn't understand is that those therapies are educationally based, they're not medically based, so the intensity-- they're not the same level."