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Thursday, July 4, 2024

Mercedes Driver Slaps Autistic Kid

In The Politics of Autism, I write about the everyday struggles facing autistic people and their families, including violence against autistic children.

 Vivian Chow at KTLA-TV:

Cell phone video captured the moment a man slapped a child with autism for touching his car in Pacoima.

Alfredo Morales, 10, and his older sister were crossing the street at Laurel Canyon Boulevard and Osbourne Street when the boy reached out and touched the emblem on the man’s Mercedes-Benz sedan.

The man made an immediate U-turn and followed the two siblings to a bus stop where he pulled over. That’s when he walked over to Alfredo who was sitting on a bench and slapped him.

His sister, who was heard apologizing, tried to intervene, but the man was still able to strike the boy.

Wednesday, July 3, 2024

Autism CARES Reauthorization


The Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act, first enacted in 2006 and signed into law by President George W. Bush, represents a landmark in coordinated federal efforts to address the increasing prevalence of Autism. With the Centers for Disease Control and Prevention (CDC) now reporting that approximately 1 in 36 kids are diagnosed with Autism and 4.5 million adults in America have Autism, the need for a comprehensive approach to Autism has never been more critical. The Autism CARES Act has established crucial programs and committees, including the Interagency Autism Coordinating Committee (IACC) and various initiatives across the Department of Health and Human Services (HHS), aimed at enhancing our understanding and management of Autism.

Issues:

Despite significant advancements in Autism research and services, the rising diagnosis rates underscore the ongoing urgency to bolster federal response. The Autism CARES Act, reauthorized last in 2019, faces a sunset deadline of September 30th, 2024. Without timely reauthorization, the future of these essential programs and the progress they represent is at risk.

Members of Congress must act swiftly to reauthorize and enhance the Autism CARES Act. The continuation and expansion of these programs are not just a matter of policy but a necessity for the countless individuals and families affected by Autism. Together, we can ensure a future where every person with Autism has the opportunity to lead a fulfilling and supported life.

Your Voice Matters:

The House Energy and Commerce Committee passed the bill out of committee unanimously on June 12th. The bill now goes to the House floor and then the Senate to become law. Contact your Senators and Representatives today and urge them to support the reauthorization and enhancement of the Autism CARES Act. Your advocacy can make a difference in the lives of millions.

Tuesday, July 2, 2024

RFK Jr. is a Bad Person

  In The Politics of Autism, I analyze the discredited notion that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread  And among those diseases could be COVID-19.

Antivaxxers are sometimes violent, often abusive, and always wrongA leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.

He is now running for president as an independent

Joe Hagan at Vanity Fair:

His work at Waterkeeper, the environmental nonprofit dedicated to protecting waterways and drinking water (distinct from Riverkeeper), had centered around mercury levels found in migratory fish. When Conor, his first son by Richardson, suffered from allergies to peanuts and soy, Kennedy went looking for answers, and found a suspect: mercury. He told Cooney, the babysitter who also worked at Kennedy’s environmental project, that Conor’s allergies “were likely because of the shots he got when he was a baby because they had mercury in them.”

By his own telling, Kennedy met mothers around this time who insisted he read research alleging that autism is caused by mercury in the MMR vaccine. The idea of vaccines causing autism had just entered the mainstream after Andrew Wakefield, a British doctor, published a 4,000-word paper in the medical journal The Lancet attempting to link vaccines to autism in children. His 1998 claim, simultaneously speculative and sweeping, became a cause célèbre in Hollywood circles, fanned by actors Jenny McCarthy and Jim Carrey. Oprah Winfrey publicized their claims on her TV show.

It was just the kind of cause Kennedy was attracted to—counter to prevailing wisdom, with a huge payoff in heroism and public glory. His friend Jann Wenner, founder and publisher of Rolling Stone, agreed, along with the editors of Salon, to co-publish a story Kennedy wrote about vaccines, which echoed Wakefield’s research. It took five years for Wakefield’s research to be debunked and The Lancet to retract his paper, which prompted Rolling Stone and Salon to pull Kennedy’s story in 2011.

By then, however, the damage had been done, and Kennedy was now linked up with a fellow anti-vax crusader named Del Bigtree, a former TV producer with no scientific background or medical training. Bigtree, who had been a producer on a TV show called The Doctors, began cultivating a following through books and TV appearances, and held anti-vax rallies in places where skepticism was already strong, like Hasidic Jewish communities. In the next few years, Kennedy and Bigtree would both appear publicly with Wakefield, publishing books of unfounded conspiracies and trolling CDC officials at public events, haranguing Anthony Fauci, the leading immunologist for the government.


Monday, July 1, 2024

The Journey to an Adult Autism Diagnosis Is Not Easy

In The Politics of Autism, I discuss the uncertainty surrounding estimates of autism prevalence.  Although diagnosis typically takes place in childhood, some adults have sought it out.

 Marina Sarris at Forbes:
While autism helped to explain aspects of their lives, some adults say, the ease and process of getting a diagnosis varied widely. Some say that their insurance companies helped them find the right doctor or psychologist to evaluate them. Others, however, say that they had problems with insurance, cost, or finding a healthcare provider who was experienced with adult autism.

Autism appears in early childhood, when it’s usually diagnosed, and many autism specialists only see children and teens. Some psychologists and psychiatrists who just see adults may not be experienced in diagnosing autism.

And autism may look different in adults. They may no longer have the “red flags” of childhood autism, such as poor eye contact and problems having a conversation, said psychologist Vanessa Bal, Ph.D., during a webinar for SPARK.

That may be because their social communication skills have developed over time, she said. Also, some adults have learned to camouflage, or hide their autism traits, in order to fit in during social situations, Bal said. Camouflaging makes a person’s autism appear less visible to others.1, 2

“For autistic adults, the presentation of autism, what autism ‘looks like,’ may look quite different from what people in the general public might expect, and even professionals who are more familiar with autism in children,” Bal said.