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Friday, November 22, 2024

ASAN Opposes the RFK Nomination

In The Politics of Autism, I analyze the myth that vaccines cause autism. This bogus idea can hurt people by allowing diseases to spread   Examples include measlesCOVID, flu, and polio.

number of posts discussed Trump's support for the discredited notion.

 Another leading anti-vaxxer is presidential candidate Robert F. Kennedy, Jr.  He has repeatedly compared vaccine mandates to the Holocaust.  Rolling Stone and Salon retracted an RFK article linking vaccines to autism.  He is part of the "Disinformation Dozen."

He is now Trump's nominee to head HHS.

The Autistic Self Advocacy Network opposes the nomination:

Robert F. Kennedy Jr. is the founder of Children’s Health Defense, a prominent anti-vaccine group. He has claimed that no vaccine has been proven safe and effective, that the recommended vaccine schedule for children is dangerous, and that “autism does come from vaccines.” He has also fought against COVID-19 vaccination, falsely calling an early COVID vaccine “the deadliest vaccine ever made.”

Vaccines are safe and effective. Vaccines do not cause autism. The idea that the measles, mumps and rubella (MMR) vaccine is linked to autism comes from one fraudulent 1998 publication claiming that the vaccine had caused autistic traits in 12 children. The man responsible for this publication, Andrew Wakefield, used unethical methods and failed to disclose financial conflicts of interest. The paper did not give enough evidence for its claim that the MMR vaccine could cause autism. It was later retracted by the journal that published it, and Wakefield had his medical license revoked.

In spite of the fraudulent origins of the idea that vaccines cause autism, and in spite of decades of replicable research proving that this is not true, some people, like Kennedy, continue to perpetuate the myth. These lies do very real harm to the autistic community. Kennedy has described autistic people in insulting ways meant to inspire fear, saying that “their brain is gone” and that the purported effects of vaccination are “a Holocaust.” By working to prevent childhood vaccination, he effectively communicates the message that living as an autistic person is a worse fate than dying of measles or pertussis.

The anti-vaccine movement has led to a wave of fake “autism cures,” many of which have very real health risks. Kennedy recently promoted two of these fake cures when he accused the FDA of suppressing “hyperbaric therapies, chelating compounds.” Hyperbaric therapy, a treatment for decompression sickness in divers, has been promoted as a fake autism cure in spite of a complete lack of evidence and associated health risks. Chelation, a treatment for heavy metal poisoning, is another fake cure, and its off-label use for autism has been associated with at least one death.

Robert F. Kennedy Jr. and his allies claim that autistic people did not exist in his youth and that “I have never in my life seen a man my age with full-blown autism.” The idea that autistic people of Kennedy’s age (70) do not exist is not true. Autistic people have always been here, but before widespread autism diagnosis, we either went undiagnosed, or received different diagnoses than would be used today — for example, the outdated diagnosis of “childhood schizophrenia” for autism, or diagnosing people who today would only have an autism diagnosis with intellectual disability. Autistic people in Kennedy’s generation were all too often institutionalized or incarcerated. Even if Kennedy is telling the truth about not seeing us, that does not mean we were not there.

Of course, Kennedy’s lies about vaccines do not just hurt autistic people. Kennedy and his nonprofit played an active role in a recent measles outbreak in American Samoa, spreading vaccine misinformation until the vaccination rate dropped low enough that 5,700 people were infected with measles, and 83 people died. Kennedy has also made false claims about COVID-19 vaccine trials and about the Vaccine Adverse Event Reporting System, blaming unrelated deaths on COVID vaccinations. Anti-vaccine misinformation like that promoted by Kennedy’s group has led to a reduced rate of childhood vaccinations in the United States since the beginning of the COVID-19 pandemic.