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Friday, April 25, 2025

Mixed Message on Autism Registry


Jakai Spikes at WTVC-TV Chattanooga:
In a Monday council meeting, the head of the National Institute of Health said they are creating a new National Disease Registry for Autism.

But when we reached out to the Department of Health and Human Services Thursday to ask if patients can opt out, they told us they have no plans to create 'an autism registry.'
"We are not creating an autism registry. The real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment strategies."

 That's despite National Institute of Health Director Dr. Jay Bhattacharya saying this in a NIH council meeting Monday...

"The platform will accelerate research and create new opportunities for cross agency use of data in real time, health monitoring, developing national Disease registries, including one a new one for autism."